Natural History Study (2021) (publication)

CureCMD (organization covering all congenital muscular dystrophies)

Muscular Dystrophy Association (organization covering all muscle diseases)

Congenital Muscular Dystrophy Patient Registry - If you are a patient or patient family with L-CMD or EDMD and haven’t yet registered your data in the CMDIR, please do so to help the community be “clinical trial ready” when the time comes.

The L-CMD Research Foundation is committed to advancing translational research for LMNA-related muscular dystrophy. We are open to partnerships and collaborations. Please reach out to hannah@lcmdresearch.org to connect.