News Once Upon A Gene: Finding Hope - From Diagnosis to Action Listen here. (Podcast) ABC News: Parents create nonprofit to find cure for toddler’s rare disease Read more. Good Morning America: These parents created a nonprofit to find a cure for son’s rare disease Read more. L-CMD Research Foundation raises $1,000,000 Read more. Houston Chronicle: Houston family launches foundation for toddler's rare disease Read more. University of Maryland: Finding Hope: Two Terps Launch Foundation to Help Fight Son’s Rare Disease Read more. Wise Health for Women Radio: Living with L-CMD Listen here. (Podcast) Mother.ly: My son was diagnosed with a rare disease at 5 months old—this is our fight Read more. Health.com: My 1-Year-Old Son is Dying—and It Would Cost $2 Million to Save His Life
